THE PLAN TODAY IN THE APPOINTMENT

 TODAY WAS A REALLY INFORMATIVE DAY IN THE HOSPITAL CUZ ME AND MY MOM WENT TO AN IMPORTANT GENERAL CHECKUP AND FIRST OF ALL BEFORE I EVEN WENT TO THE ROOM WHERE THEY WERE TELLING ME THE FULL PLAN I FOUND OUT THAT SOMEONE RANG ME FOR SAFETY QUESTIONS AND I HAD TO ANSWER QUESTIONS BUT IT WAS A BIT TOO MUCH SINCE I NEEDED HELP TO ANSWER SOME OF THE QUESTIONS. IT ALL GOT SORTED OUT IN THE END. THE DATE IS SET FOR FRIDAY (THIS SOUNDS LIKE SUCH A TWILIGHT REFERENCE SO SORRY FOR THAT) SO I JUST KILLED TIME UNTIL MY APPOINTMENT TIME. WE WENT IN AND GOT THERE IN TIME WE ONLY HAD A MINUTE DUE TO TRAFFIC. THERE WAS A BIT OF A WAIT BUT A REALLY NICE RECEPTIONIST STARTED TALKING TO ME. THEN I DID MY WEIGHT WHICH WAS 81. SOMETHING CUZ I'VE BEEN EATING A BIT BETTER NOW. THEN I MET A SOCIAL WORKER WHO WAS FEMALE FILLED OUT A FORM WITH ME AND MY MOM. THEN THE DOC CAME AND CHECKED MY CHEST AND BACK AREA TO SEE IF EVERYTHING WAS GOOD. THEN ANOTHER PERSON CAME AND TALKED TO ME ABOUT GETTING A LINE AND A JELLY HEART SCAN THING TO CHECK MY HEART AND THAT'S OKAY. ALSO THERE WERE SOME QUESTIONS REGARDING MY PET-CT SCAN THAT HAD TO BE ANSWERED STRAIGHT AWAY AND CLARIFIED AS I ASKED A FEW QUESTIONS ABOUT THE LOCAL ANAESTHETIC AND THINGS ABOUT GOING OUT  TO PLACES SINCE IT'S HARD BEING COOPED UP IN ONE PLACE. THE DOC SAID I COULD GO OUT IN ANY SPACE JUST NOT A CROWDED AREA LIKE A MALL OR BUS BUT DOING THINGS THAT ARE ENJOYABLE WILL DEFINITELY HELP ME BEFORE I GO BACK INTO HOSPITAL FOR A BIT. AFTER THE SOCIAL WORKER LEFT WITH SO MUCH INFORMATION FOR ME AND MY MOM SOMEONE DID AN OXYGEN TEST TO CHECK IF MY OXYGEN WAS OKAY AND IT WAS 96 PERCENT WHICH WASN'T TOO BAD. ALSO THE DOC CAME BACK AFTERWARDS WITH A NEW PLAN SAYING THAT AFTER THE PET-CT SCANS THEY'LL GET A GOOD PICTURE OF MY OTHER CT SCANS THEY'LL SEE THE PHOTOS AND START GIVING ME THE HEART JELLY TEST AND THE LINE THING ON MONDAY OR SOMETHING AND ON TUESDAY THEY'LL START DOING CHEMOTHERAPY ON TUESDAY AND I'M JUST WORRIED ABOUT ALL THESE TESTS CUZ I'VE NEVER BEEN IN A MACHINE WHERE THEY USE DYE TO LIGHT UP WHEREVER YOUR CANCER SHOWS UP ON THE SCREEN. I FEEL LIKE AUGUSTUS WATERS FROM THE FAULT IN OUR STARS RIGHT NOW CUZ HIS WHOLE BODY SCAN LIT UP LIKE A CHRISTMAS TREE AND IT WAS THE SADDEST THING EVER. ANYWAY THE DOCS  SAW MY INFORMATION FROM UNI AS THE PROGRAMME LEAD CAME BACK ONTO EMAIL TODAY AND I JUST NEEDED SOME SUPPORTING EVIDENCE FROM MY DOCS AS I STARTED A DEFERRAL FORM TODAY. IT'S REALLY STRESSFUL CUZ I THINK DOING WORK PASSES THE TIME SOMETIMES AND I GET THAT EVERYONE'S GONNA BE SUPPORTIVE/UNDERSTANDING CUZ I NEED THIS TIME TO FOCUS ON MY HEALTH. ALSO THE SOCIAL WORKER SAID THERE'S GRANTS AND THAT AVAILABLE THAT I CAN CLAIM AND OTHER ORGANISATIONS THAT WILL GIVE US HELP AND SUPPORT DEPENDING ON MY NEEDS ETC. SHE WAS GIVING ME AND MY MOM LOTS OF INFORMATION CUZ SOMETIMES PEOPLE WANNA CHAT TO SOMEONE THAT ISN'T THEIR PARENT SOMETIMES AND I AM GETTING BETTER AT COMMUNICATIONS. ALSO I FOUND OUT HOW SHORT I AM TODAY AND I WON'T BE DOING ANY MORE GROWING I'M JUST UNDER FIVE FOOT. THAT'S CRAZY. ALSO IT WAS A REALLY NICE APPOINTMENT CUZ IT WAS JUST ME GETTING READY TO GO TO TREATMENT AND FINDING OUT THAT I CAN GO AND DO THE THINGS I LIKE DOING HELPED ME TO BE OKAY WHILE FEELING FREAKED OUT ABOUT ALL THESE SCANS I'M GONNA HAVE EVEN THOUGH NOTHING'S GONNA HAPPEN. I ASKED ABOUT HAIR LOSS AND THAT BECAUSE THE DOC DID TELL ME THAT IT'D BE INTENSE BUT I'D NEED TO HAVE ANTI-SICKNESS MEDS TO HELP WITH ALL THAT. THE DOCS ON MY TEAM WERE REALLY HAPPY WITH THE DOCUMENTATION OF MY BLOOD SUGAR AND I DID EXPLAIN ABOUT HOW DIFFICULT IT WAS TO USE THE MACHINE AND FIGURING THINGS OUT TAKES TIME AND EFFORT. ALSO I JUST THINK I'VE GOTTA TAKE IT ONE DAY AT A TIME AND JUST RELAX MYSELF CUZ NEXT WEEK IS GONNA BE SUPER HECTIC EVEN THOUGH ALL MY TESTS AND RESULTS MIGHT NOT COME BACK QUICKLY. AT LEAST WE GOT THE BALL ROLLING AND I CAN START TREATMENT AND AFTER MY FIRST BIT OF CHEMOTHERAPY I COULD BE IN THE HOSPITAL FOR 3 DAYS JUST SO THE DOCS CAN KEEP AN EYE ON HOW I'M REACTING TO THE MEDS AND CHEMO CUZ SOMETIMES MOODSWINGS COME FROM MEDS AND THE DOC WAS EXPLAINING THAT MY STEROID MEDS COULD GIVE ME INSOMNIA AND THAT AND I LOVE SLEEPING SO IT'S GONNA BE QUITE HARD. ALSO ON THE DAYS WHERE I HAVE THE PET-CT SCAN I DON'T HAVE OT TAKE MY STEROID AND I'M EXCITED FOR THAT CUZ I MIGHT BE A LITTLE BIT MORE ME. THEY SAID YOU CAN'T EAT FOR 6 HRS BEFORE THE SCAN! THAT'S SO MAD. I NEED FOOD. AFTER THAT THE LADY DOC WAS EXPLAINING OTHER STUFF FOR THE TEST AND WHERE I'LL HAVE TO GO AS I'LL BE IN TWO HOSPITALS SINCE I HAVE TO GO TO THE ROYAL INFIRMARY AND GLENFIELD AFTER THAT. ALSO THE TEAM ARE REALLY GREAT BECAUSE THEY ASK ME QUESTIONS ABOUT HOW I'M FEELING AND IF I UNDERSTAND WHAT'S GOING ON WHICH I DO. I JUST ASK QUESTIONS IF I'M CONFUSED AND DON'T UNDERSTAND A MEDICAL PROCEDURE. THE APPOINTMENT WENT QUITE WELL AND I JUST THINK IF EVERYONE'S ON BOARD WITH EACH OTHER ABOUT MY TREATMENT THEN EVERYONE'S INCLUDED SO THEY CAN BE THERE FOR ME. I CAME HOME AND STARTED BLOGGING BUT THE OTHER ONE WAS A BIT PERSONAL. SO THAT'S THE BIG GRAND SCHEME OF THINGS HEALTH WISE AND NOW I'M GONNA LET Y'ALL GET YOUR Z'S SO BYE FOR NOW

VOTE COMMENT AND SHARE

P.S THE DOC SAID THAT THEY'LL SEND INFORMATION OUT ABOUT CHEMOTHERAPHY THAT I HAVE TO READ UP ON SO I KNOW WHAT IS HAPPENING TO ME AT ALL TIMES. I'M NOT SURE IF IT'S ELECTRONIC OR A PAPER COPY I'LL HAVE TO FIND OUT ABOUT THAT. 

Comments

  1. PinkSnowmanApril 21, 2022 at 4:23 PM

    You must be super scared and overwhelmed yet you're managing to stay positive 💓 I pray the treatment is effective and you recover quickly xx

    ReplyDelete
  2. The Faceless VoiceApril 29, 2022 at 3:02 AM

    I hope you carry on this blog, it's so unique to hear things through your perspective but make sure to rest as much as you can too. It's always good to ask a million questions so you have a better understanding on what to expect. When I read your first post I literally thought about Augustus from The Fault in Our Stars toooo! Absolutely loved the book/movie.

    ReplyDelete

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