My Cancer Journey

 It's me again. This was the best day of my life. Going back home was amazing. I ate my toast and honey first. Then I ate some sandwiches later on. Drank my water. OMG in the morning, I had all my meds. It was actually an enjoyable experience. Also, a nurse told me you can't do piercings after 3-4 months. A relative has been banging on about it for ages. Also, with chemotherapy you can't get pregnant. It's a risky thing. As well as that, I can't sit in the sun for long amounts of time. I have to be in shaded areas. I have to put SPF 50 on, which protects the skin.  There was a whole thing about eating food. It was called an Neutropenic diet. This is a diet, which allows the red/white blood cells in the body to repair themselves. This could be to fight infections or get blood around the body. This diet will help me to make my immune system stronger. I will have to eat the freshest food out there. I can't eat take-aways, as some restaurants might not serve food th...

 It's me again. Today started off as the worst day so far. I had my meds, they weren't going down properly. I couldn't swallow properly. I felt nauseous from drinking too much. I had some side effects from the meds. It was really upsetting. Then I was fine afterwards. The docs and nurses came to check up on me. Then my first chemo session started. I was hooked up to the drip. It reminds me of Lincoln Burrows when he was strapped to the electric chair. It's a Prison Break reference if you don't know.  I chatted to my family. Made a card for the docs and nurses. It was a really fun experience. The nurses were quite chuffed. After a while I just blogged. Then while I was on the phone to my lovely auntie, I had some bad side effects of chemo. I was shaking and afterwards I was shivery, I had a bad headache, blurred vision, and pins and needles in the right foot. It was not a pleasurable feeling. I felt really nauseous as well. It was all to do with anti-sickness. I just...

 Hi again.  The second day of chemotherapy was quite good. I was hooked up to one drip. It was really cool! I just think that it's annoying you can't move around freely while attached to machines. It's like I'm handcuffed to it. Maybe I could do a Michael Scofield from Prison Break. Not that tattoos are allowed in my religion. Imagine getting a needle put in your skin for time, while you're chilling on a recliner. Anyway I had my chemo, The machine was going at 100 miles per hour. The nurse had to go and get someone else. It was all okay though.  Then another nurse came and gave me craft stuff to draw and make stuff with! I was so happy! I did some doodling. It's really cool. I made it all colourful. I'll take it home. A lady came and gave me a book made by other teens/young adults. It was really amazing. I loved making Eid cards for my family. I tried to do painting by numbers, but I didn't do it because I have a Visual Impairment. The numbers and pictu...

 Today was a full on day. I woke up from 7 or 8 o'clock. Took my meds. Ate Breakfast. Got ready to come to the hospital. Checked into my room. The room is amazing! It's quite spacious, there's a bed, table, chairs, sofa bed, bathroom, cupboard/draws, and side table to put food on. The nurse came and asked me about myself and my vision and other health stuff. Then she did blood pressure/temperature. The blood pressure was slightly high due to my hyperness. Then I took paracetamol as my arm was killing. I had the first bit of chemo through the line with some blood being taken. It was really cool! Then I had to be attached to a drip. I had 2 chemos through the drip. It wasn't a fun experience as I couldn't move around easily. It was so annoying1 i was able to do everything I needed to though.  I reacted to the chemotherapy quite well. Cancer isn't easy with my other condition. I guess I am just taking it one step at a time. That's all that matters right? I was ...

 The appointment went really well today. It was really positive. Firstly I got shown to a room. I went in cubicle 3. It was an amazing room, it had free Wi-Fi, a TV, a table/chairs, and a bed. I also connected my phone to the free Wi-Fi. Then a nurse came and took us to this long walk. The person with the echo test machine came to my room. It was a really cool experience. I saw the photo of my heart. I saw the valves of my heart. When you see a baby on them ultrasound things it's probably so cool. Then I chilled for time. Then a nurse came and talked to me about how I was getting on. Also, before I went into the room the nurse did my weight. Then the nurse came to my room, and she was testing my blood pressure. It was a  little bit high. I think it's due to the stress of having 2 medical conditions. Then the nurses came and explained everything to me while doing a form. All the meds and side effects. Stuff about Chemotherapy. Also about the line. I talked about getting int tou...

this is the hardest thing when it comes to juggling 2 medical conditions. talking helps a lot. we don't realise it but bottling it all up isn't the road to take. recently i've been inspired to talk and be 100 percent positive. it's about different ways of communication such as easy read which is a sheet with pictures on the side and text explaining what the picture is on about. the other pec things aren't really helpful for me but it can be for other people. pec symbols are pictures of things explaining what they are if a person has a more complex disability. pictures are below. i really think i've made a little bit of progress so far. i think it's just a case of taking it each day at a time. it takes time as people can be set in their ways. maybe the older generation. not judging anyone. it's all about figuring out how to talk about the things you need to say. i think i't's good to think about these things at night. the next day you know what yo...

 I'VE BEEN ON THE GO SINCE 6 SOMETHING IN THE MORNING AND IT WAS REALLY RUSHED. I HAD TO GO TO THE ROYAL FOR SOMETHING AND THEN TO GLENFIELD FOR THE REALLY COOL PET SCAN THING. THE ONLY ISSUE WE HAD WAS FINDING PARKING. ON THE WAY THERE WE HAD AMAZING CONVERSATIONS IT WAS JUST NORMAL AND HOW IT SHOULD BE STRAIGHT UP WITH A LOT OF EXPLANATIONS ALONG THE WAY. I GOT THERE AND WENT IN THIS WAITING AREA TO FILL OUT SOME SUPER LONG FORM. WE WENT IN A ROOM FOR BLOODS AND THE CANNULA AND THE NURSE EXPLAINED THE PROCESS OF THE DYE BEING PUT IN WITH AN INJECTION OF RADIATION AND IT WAS REALLY WEIRD AT FIRST BUT I GOT TAKEN INTO A ROOM AND THE NURSE EXPLAINED THAT THE SCAN WILL BE FROM THE HEAD TO THE THIGH.  A FEW SECONDS LATER I WAS TAKEN TO A CHILLING OUT ROOM WHERE I GOT GIVEN THE RADIATION AND THE NURSE EXPLAINED MY MOM HAD TO LEAVE THE ROOM DUE TO HIGH LEVELS OF RADIATION AND IT CAN AFFECT ANOTHER PERSON SUCH AS A CHILD OR A PREGNANT PERSON. AFTER THE BLOODS AND THAT THE NURSE TOOK...

 THIS IS AN IMPORTANT THING THAT PEOPLE DON'T REALISE. I MEAN SLEEPING/RESTING IS KEY TO RECOVERY. SOMETIMES WE ARE ALWAYS ON THE GO AND WE DON'T ALWAYS RECHARGE OUR BATTERIES IN OUR BODIES WHICH CAN BE SERIOUS IF THERE'S SOMEONE WITH AN UNDERLYING CONDITION. ALL-NIGHTERS AND STAYING UP LATE IS A HUGE NO-NO IF THERE'S SOMETHING INTERNAL GOING ON IN THE BODY. THIS IS A HUGE THING THAT I NEED TO WORK ON AS I ALWAYS LIKE TO STAY UP AND WRITE THINGS DOWN DURING THE NIGHT. SOME PEOPLE EVEN OVERTHINK MOST OF THE TIME AND IT CAN LEAD TO HAVING A HARD TIME SLEEPING. MOSTLY THE BRAIN NEEDS TO RECHARGE OVERNIGHT. RESTING IS IDEAL FOR DESTRESSING IN A WAY. IT DOESN'T HAVE TO BE FULL ON SNORING OR ANYTHING IT CAN JUST BE RELAXING IN A THERAPEUTIC WAY. TODAY I WAS REALLY GOOD I WAS SWITCHED OFF FROM SOCIAL MEDIA AND I HAD 0 SCREEN TIME CUZ I WAS SITTING OUTSIDE SOAKING UP THE GREATNESS OF THE VITAMIN D. I THINK IT'S A WORK IN PROGRESS THING SO DON'T WORRY ABOUT HOW MUCH ...

 TODAY WAS A REALLY INFORMATIVE DAY IN THE HOSPITAL CUZ ME AND MY MOM WENT TO AN IMPORTANT GENERAL CHECKUP AND FIRST OF ALL BEFORE I EVEN WENT TO THE ROOM WHERE THEY WERE TELLING ME THE FULL PLAN I FOUND OUT THAT SOMEONE RANG ME FOR SAFETY QUESTIONS AND I HAD TO ANSWER QUESTIONS BUT IT WAS A BIT TOO MUCH SINCE I NEEDED HELP TO ANSWER SOME OF THE QUESTIONS. IT ALL GOT SORTED OUT IN THE END. THE DATE IS SET FOR FRIDAY (THIS SOUNDS LIKE SUCH A TWILIGHT REFERENCE SO SORRY FOR THAT) SO I JUST KILLED TIME UNTIL MY APPOINTMENT TIME. WE WENT IN AND GOT THERE IN TIME WE ONLY HAD A MINUTE DUE TO TRAFFIC. THERE WAS A BIT OF A WAIT BUT A REALLY NICE RECEPTIONIST STARTED TALKING TO ME. THEN I DID MY WEIGHT WHICH WAS 81. SOMETHING CUZ I'VE BEEN EATING A BIT BETTER NOW. THEN I MET A SOCIAL WORKER WHO WAS FEMALE FILLED OUT A FORM WITH ME AND MY MOM. THEN THE DOC CAME AND CHECKED MY CHEST AND BACK AREA TO SEE IF EVERYTHING WAS GOOD. THEN ANOTHER PERSON CAME AND TALKED TO ME ABOUT GETTING A LINE AND...

  IT ALL STARTED WITH A COUGH ON THE 2ND OF APRIL 2022 AND I WAS COUGHING LIKE NOBODIES BUSINESS AND MY MOM RANG 111 AND THEY TAKE SO LONG TO GET BACK TO YOU SO AT 9:00 IN THE EVENING THEY RANG BACK AND TOLD US TO GO TO THE MERLYN VAZ AT 2:30 IN THE MORNING AND MY MOM WAS LIKE YOU CAN GO DO ONE CUZ I'M NOT DOING THAT SO THEY SUGGESTED GOING TO THE A&E SO AT 10:00 SHE RANG A RANDOM TAXI COMPANY AND WE WENT TO THE A&E BUT HE WAS DRIVING QUITE ROUGHLY SO IT WAS A TERRIFYING JOURNEY TO THE HOSPITAL. WE GOT IN THE ADULT A&3 AND REGISTERED AND A REALLY FUNNY THING HAPPENED THE RECEPTIONIST THOUGHT MY MOM WAS THE PATIENT WHEN IT WAS ME AND SHE WAS LIKE NO IT'S FOR MY DAUGHTER. THEN i WENT INTO A ROOM AND GOT ASKED QUESTIONS ABOUT HOW URGENT IT WAS AND THE LADY WAS BEING SO RUDE AND IT WASN'T GREAT. THEN I HAD BLOOD PRESSURE AND BLOODS TAKEN AND A CANNULA PUT IN MY RIGHT ARM. AFTER THAT IT WAS A WAITING GAME AND WE SAT THERE IN THESE HORRIBLE UNCOMFORTABLE WAITING ROOM ...