OPENING UP TO PEOPLE/A PERSON
this
is the hardest thing when it comes to juggling 2 medical conditions. talking
helps a lot. we don't realise it but bottling it all up isn't the road to take.
recently i've been inspired to talk and be 100 percent positive. it's about
different ways of communication such as easy read which is a sheet with
pictures on the side and text explaining what the picture is on about. the
other pec things aren't really helpful for me but it can be for other people.
pec symbols are pictures of things explaining what they are if a person has a
more complex disability. pictures are below. i really think i've made a little
bit of progress so far. i think it's just a case of taking it each day at a
time. it takes time as people can be set in their ways. maybe the older generation.
not judging anyone. it's all about figuring out how to talk about the things
you need to say. i think i't's good to think about these things at night. the
next day you know what you need to chat about. it's all to do with listening
cuz it's a two way street. my dad was explaining this today.
it's
cuz i was just saying yeah afterwards which is my way of getting what a person
is on about. for example today a little kid was crying cuz i was trying to help
them get back onto youtube but i don't know how to use an iPhone and she
started shouting. obviously the communication of the explanation as to why I
annoyed the kid wasn't really great so
it was super upsetting for me in that situation and i didn't know how to deal with it at first but after talking to an experienced parental I figured out that you don't do all that communication until like the kid's 5-6 years old.
Also it's this 'older generation' that needs to get with the programme- no discriminating them here! They need to find other forms of communication if a person with a disability doesn't get it at first. You've got to lean in the right direction with these things. Maybe they should use pictures and that so I will be able to figure out some stuff better. It takes time though. For a person to get over something it can take a long time, if someone completely goes quiet for a couple of months they immediately go crawling back into their shell and bottle everything up, which isn't good cuz they can explode easily. Just like a coke can exploding everywhere when the fizz comes out. Please don't do that! Talk to your parents all the time even if they don't understand you the first time. Keep on speaking all the time.
Also it'd be the greatest help if a person has friends who are disabled and their parents try and help your parents out with stuff to do with opening up more. I totally get it that some people wanna keep to themselves most of the time. Teenagers are the worst for this they won't come out of their room for ages. They'll come back to their parentals later on in age. Look at me and mine. Opening up to a person requires total trust with the whole confidentiality thing since some people might not keep that in consideration. Teenagers will always wanna do their own thing since they go through all these crazy phases. Their bodies are developing so they don't really know what the heck to do. Going on a drive or just for a meal or something really helps.
Sometimes it's just easier to get out of the UK. This country is so depressing at times. With my new condition I've been as positive as I can. I'll take it in baby steps. I did open up so much today in the hospital though. I asked all the right questions. It was a lot to take in though. I wasn't too overwhelmed cuz the docs explained everything so well. Okay back to the topic at hand, opening up takes time and I'm getting back into it slowly, but surely. My cocoon is opening up and I'm coming out like a social butterfly. I'm like Absolem from Alice in Wonderland. Such a great movie.
As a complete 3rd party outsider I think a person needs all the support from the family, (famiglia) to survive anything. They can't bounce back without that network around them. You don't always need to chat to your family all the time. It could be someone else. A friend, youth-worker, social-worker, and therapist. Everyone needs a chance to express themselves in the best way possible to feel 1000 percent okay. Communication is a long open road that takes time. It takes time to learn. Sometimes people have to hold an object to feel like they know the other one's talking. Having 2 medical conditions is a stressful thing for anyone. You need to keep the faith in God. Talk to him in whatever way you want to.
Most of the time it takes a whole day to figure out what a person is saying. You should appreciate every little bit of advice a more experienced person tells you. Take them into consideration. Like grains of salt. Let's not forget the little humans of the world! They're chatterboxes. They will come to you and be straight up telling you NO! They're super funny too. I haven't laughed so hard until this week. Love their company. Sometimes it gets a bit difficult since a person might have a similar personality to the kid. It's all about chatting to their parents and figuring out how to deal with it all.
The real people who you need to be chatting to are young 12-50+ year olds. Some of their ideas are insanely amazing. They know so much about so many things. Go to them for anything and everything. The older people are better for some things and the younger people are better for other things. I've done so much learning this week about it. The main thing is if you have a problem go to them to sort it out. They won't get you straight away, but you might have to say it again and again for them to get it. Eventually they';ll be able to explain to you how to deal with it. Family is everything. Don't do that thing from Divergent where they're like 'faction before blood.'
Even though they're like 'we're telling you for your own good' might not always work most of the time just listen to everything they're saying. Even though I'm not Tobias Eaton I'm Billy Boo. It's about getting that across in the nicest possible way though. Do the Percy Jackson thing though in Sea of Monsters, the scene where Annabeth was like 'Rewrite your destiny, and make it your own, Do it for Tyson.' An amazing movie, but there's a religious issue with the cyclops guy. In the world of opening up you have to be No.1. You can't worry about how anyone will take it. This is a quality I love about my male parental. Man keeps to himself. He's like a human vault, he won't chat badly about you to anyone. Even though a person has a lot on their plate they'll always be there for you. It's about you approaching them in a nice calm way. You cannot get too hyper while you're talking too,
I love those people who keep to themselves. They just do home, go to the mosque, chill at home etc. They have their own path to take with the spiritual stuff. Also even if a person has a bad past why does another one judge them? They're changing their life around to make better decisions. Why do people dwell on the past so much? You should be living in/embracing the present and looking forward to what lies ahead for you in the future. In this world and the next life. You gotta keep your trust and faith in God. So don't forget that your people can never do favouritism with your siblings. Everyone wants the best for their kids at the end of the day. I'm living my best life right now. I know me and mine would choose each other over a distant relative in a heartbeat.
Ooh speaking of new movies Thor and Doctor Strange are coming out in the cinema. Can't wait! All you Marvel fans watch them. I need to watch all of them in the right order though. Okay back to what I was saying. Even if you didn't like something that was said in the heat of the moment, you need to clear the air with that person before the end of the day. Get some clarification on it. Get them to explain it in a way that you can understand as a person.
Right I'm gonna stop rambling now and leave you guys to chew on this one for yourselves.
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That was a lot to chew on for sure but very insightful as always. You're 100% correct - keeping lines of communication open is what's best. Even if you feel people may not understand or misunderstand try be patient and persevere - the older generation usually don't grasp that concept as quickly as they were never ones to ask questions to their elders and just did what was asked. As long as questions and conversations are happening in a respectful manner (by the elders too as I feel respect is demanded from the younger generation but the elders are not respectful to their young - it works both ways) then there really shouldn't be any issues. So glad that you're learning new methods of communication as like you said, you are juggling two medical conditions so you need to see what works for you. Confidentiality is also key, people feel safe confiding in you if they know you will not repeat it to someone else - the quiet peaceful life minding your own business is definitely a plus.
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